Episode 1 Interview with Dr. Heather Church and Dr. Jackie McGinley

Welcome to the inaugural episode of the DDNJ Author insights podcast. We are excited to welcome you to this new series of interviews with authors published in the Developmental Disabilities Network Journal, adding another level of accessibility and insight to the world of disability research.    In this episode, Dr. Matthew Wappett, Editor in Chief of the DDNJ and Executive Director of the Institute for Disability Research, Practice, and Policy at Utah State University, interviews Drs. Church and McGinley about their recently published article "Advance Care Planning Within Individualized Care Plans: A Component of Emergency Preparedness" - check out their full article here.   We learn about what motivated them to do this research, the take home message, inspiring stories, and some personal information to make the names of authors' on a pdf into real people doing impactful work. We hope you enjoy this episode.   Full transcripts available in English or in Spanish.   Bios: Heather has a PhD in health & rehabilitation sciences, specializing in health policy, health equity, developmental disabilities and mental health. She has enjoyed working with people who have developmental disabilities for 20 years. In this time, she has been inspired by the commitment to removing barriers to inclusion and full participation in society demonstrated by people with developmental disabilities, their loved ones and those who serve them.  www.heatherchurchrp.com    Jackie McGinley is a licensed social worker and Assistant Professor in the Department of Social Work. She earned her MSW from the Rutgers University, School of Social Work and her PhD from the University at Buffalo, School of Social Work. She also completed a year-long fellowship with the University of Rochester, receiving advanced research and clinical training from the Leadership Education in Neurodevelopmental Disabilities (LEND) program. Her mission as a social work scholar is to lead translational research that improves care for people with disabilities as they age, experience serious illness, and reach life’s end.   Resources mentioned in this episode:   The ARC Center for Future Planning: https://futureplanning.thearc.org/ Breaking Bad News Website, from Professor Irene Tuffrey-Wijne & colleagues in the United Kingdom: http://www.breakingbadnews.org/ Talking End of Life (TEL) Website, from Professor Michele Wiese & colleagues in Australia: https://www.caresearch.com.au/tel/tabid/4881/Default.aspx The Conversation Project: https://theconversationproject.org/nhdd/advance-care-planning/ Five Wishes: https://fivewishes.org/