Episode 1: Our Lived Experiences

A brutally honest discussion of the Congenital Heart Defect care experience from very different perspectives. In the first episode of 1% Heart, I’m joined by Aliza Marlin, a CHD patient, influential advocate, and a ray of positivity. Together, we relive our personal experiences with CHD care through a raw, candid, heart-to-heart discussion. We explore the realities of diagnosis, treatment, and the often challenging transition from pediatric to adult care, comparing good and bad heart care. This conversation highlights the power of community support, the importance of self-advocacy, and the critical role of communication in healthcare. Aliza's optimistic approach, alongside my reflections, underscores the resilience of CHD patients and the importance of finding the right care. Disclaimer & Trigger Warning: Nothing in this episode constitutes medical advice. These are our personal experiences, opinions, and stories. This podcast contains honest discussions of medical trauma, adult language, and adult content. Listener discretion is advised.