Episode 1 - Sharing Your Story

In this episode we talk to Claudette Medefindt, Head of Science at Retina South Africa.Claudette has Retinitis Pigmentosa and she was one of the founder Members of Retina South Africa and Retina SA were in turn one of the founder members of Retina International. Claudette is a trained peer Counsellor and is at present the National Secretary and also heads up the Science and Patient Services Sub Committees. Claudette has been a volunteer at Retina SA for the past 40 years.As a peer counsellor, Claudette counsels newly diagnosed people and she has realised how frightening this journey is going to be for them. "We want to use our patients or experts in the field to come onto our podcast to give a short perhaps inspiring or informative talk about what can help people face this journey". "We would like patients, family members or experts to come onto our podcast and offer practical advice and answers to questions". We want people to know that they are not alone in this journey, we are here to help you. If you would like to share your inspirational story with us, send an e-mail to [email protected] or via our website at www.retinasa.org.za or call our Sharecall 0860 59 59 59. This podcast is supported by Roche Products (Pty) Ltd. Podcast Disclaimer: Any information, either audio or visual, contained on this Podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We are not medical doctors, and you should always contact your physician or other qualified health care professional for any medical advice you need.The views expressed in this podcast do not reflect the views of Retina South Africa or any of our sponsors.