Episode 119: Gaining Access to MS Medications with Lisa Aquillano, PharmD, BCPS, MSCS episode artwork

EPISODE · Dec 10, 2019 · 33 MIN

Episode 119: Gaining Access to MS Medications with Lisa Aquillano, PharmD, BCPS, MSCS

from RealTalk MS · host Jon Strum and Lisa Aquillano

What can you do when the MS medication you need can cost $80,000, $90,000 or even $100,000 a year, and you don't have health insurance? Or you have health insurance, but your insurance company won't approve the specific disease-modifying therapy that your neurologist thinks will be best for you?   My guest is Lisa Aquillano, a Clinical Pharmacy Specialist in Multiple Sclerosis at Emory University Hospital in Atlanta, Georgia. And we're talking about specific steps that you can take to overcome the obstacles standing in the way of gaining access to your MS disease-modifying therapy. We're also talking about a remarkable program for people living with MS and their care partners. But the window to register for this program is just 24 hours long! And it's coming up in 2 days! We'll tell you all about the program and let you know exactly how to register.   We'll tell you about what may be an important new discovery of a molecule that completely resolves MS in mice.   We'll also tell you about a study that shows that people living with MS who are also dealing with depression are much more likely to develop debilitating disability sooner.    And we'll tell you how and why Google is cracking down on shady stem cell clinic ads.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   CAN-DO Program: 24-Hour Registration Opens Dec. 12  2:15 MicroRNA Resolves Mouse Model of MS  5:39 FDA Approves 3 Generics for Gilenya    8:06 Depressed MS Patients Suffer More Serious Physical Disability Earlier    9:39 Google Cracks Down on Stem Cell Clinic Ads  12:25 My Interview with Lisa Aquillano  14:48 Share This Episode  32:19 How to Subscribe to RealTalk MS, Download the RealTalk MS App, and Listen with Alexa  32:43 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  http://realtalkms.com/119 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review  The Can-Do Program STUDY: Oral Administration of miR-30d from Feces of MS Patients Suppresses MS-Like Symptoms in Mice By Expanding Akkermansia Muciniphila STUDY: Diability Worsening Among Persons with Multiple Sclerosis and Depression: A Swedish Cohort Study Give RealTalk MS a Rating & Review  Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 119 Hosted By: Jon Strum Guests: Lisa Aquillano, PharmD, BCPS, MSCS Tags: MS, MultipleSclerosis, MSResearch, MSSociety, CanDoMS, Gilenya, Depression, Stemcells, RealTalkMS Privacy Policy

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Episode 119: Gaining Access to MS Medications with Lisa Aquillano, PharmD, BCPS, MSCS

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She’s a Hazard to Herself She’s a Hazard Hi there, I’m Mallory, and I’d like to invite you into our world with “She’s a Hazard to Herself!” Join us as we navigate life with Multiple Sclerosis from the seat of my power wheelchair. Discover stories of resilience, family, and the community we’ve built around chronic illness. Whether you’re impacted by MS or want to learn from our journey, there’s something here for you. So why wait? Subscribe to “She’s a Hazard to Herself” on your favorite podcast app and be part of our journey today. Let’s lift each other up, one episode at a time! Riverbend Church Riverbend Church (Hernando, MS) Weekly sermons from Riverbend Church, Hernando MS LML/CPL Lecture: 'To Die or not to Die: Assisted Dying in England and Wales - The current legal, moral and societal issues' The Centre for Law, Medicine and Life Sciences (LML) and the Centre for Public Law (CPL) hosted Saimo Chahal to deliver a lecture on 7 March 2017.Saimo Chahal is a leading figure in public law, human rights and international law. She has acted as the solicitor in the leading assisted suicide cases of R (Jane Nicklinson and Paul Lamb) v The Ministry of Justice & the DPP & The Attorney General UKSC [2013] and R (Debbie Purdy) v The Director of Public Prosecutions (2009). Further legal challenges to the law prohibiting assisted suicide are imminent and will be heard in the courts this year.Saimo Chahal:- She is listed in the Thompson Reuter’s Top 100 Super lawyers List- In January 2016, Black Lawyers Directory (BLD) first ever “Movers and Shakers” list of the most influential and powerful black lawyers;- In April 2014, Ms Chahal was awarded the tile of Honorary QC in recognition of her major contribution to the development of the law of England and Wales. The title has only been a The Data Engineering Show The Firebolt Data Bros The Data Engineering Show is a podcast for data engineering and BI practitioners to go beyond theory. Learn from the biggest influencers in tech about their practical day-to-day data challenges and solutions in a casual and fun setting.SEASON 1 DATA BROSEldad and Boaz Farkash shared the same stuffed toys growing up as well as a big passion for data. After founding Sisense and building it to become a high-growth analytics unicorn, they moved on to their next venture, Firebolt, a leading high-performance cloud data warehouse.SEASON 2 DATA BROSIn season 2 Eldad adopted a brilliant new little brother, and with their shared love for query processing, the connection was immediate. After excelling in his MS, Computer Science degree, Benjamin Wagner joined Firebolt to lead its query processing team and is a rising star in the data space. For inquiries contact [email protected]: https://www.firebolt.io

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This episode is 33 minutes long.

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This episode was published on December 10, 2019.

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What can you do when the MS medication you need can cost $80,000, $90,000 or even $100,000 a year, and you don't have health insurance? Or you have health insurance, but your insurance company won't approve the specific disease-modifying therapy...

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