Episode 12: The Journey You Never Choose: Kyler’s Story & Building Hope Through AVM Alliance

In this episode of FEARLESS, I sit down with Raylene Lewis—founder of AVM Alliance and mom to Kyler, a stroke survivor whose life changed in an instant.What started as a normal day turned into emergency brain surgery, a diagnosis no parent is prepared for, and a journey filled with impossible decisions, setbacks, and moments of uncertainty.Raylene shares the raw reality of navigating a brain AVM diagnosis—the fear, the constant “choose your own adventure” decisions, and the weight of knowing that every choice matters when it comes to your child’s brain. But this conversation isn’t just about crisis—it’s about what comes after.From multiple treatments and setbacks to Kyler now being considered “no evidence of disease,” this story is a powerful reminder that hope is real—even when the path is anything but clear.Out of her own experience of feeling lost and unsupported, Raylene created AVM Alliance—a community dedicated to helping families navigate pediatric stroke and brain vessel disease so no one has to walk this journey alone. We also talk about:• The emotional toll on families and siblings• The silent weight parents carry making life-altering decisions• What support actually looks like during and after a medical crisis• How simple acts—like letters or care packages—can make a real differenceIf you’ve ever wondered how to help… or needed a reminder that strength doesn’t always look loud—this episode is for you.🎧 Listen now and be part of the community that reminds families: they are not alone.Episode Resources: Check out the AVM Alliance Website: https://www.avmalliance.org/Email the AVM Alliance: [email protected] out the Facebook Group: https://www.facebook.com/AVMAlliance