Episode 13 - Infant Loss and Congenital Heart Disease with Claire Shum

In episode 13 Emma shed's many tears with Claire Shum of @abigailsheart who shares her story of infant loss after they lost their daughter Abigail in January 2020 to a congenital heart defect called Hypo-plastic Left Heart or HLHS.Congenital Heart disease is the most common form of birth defect in Australia, affecting up to 1 in 100 live-born babies and the Victor Chang Cardiac Research Institute states that a baby is born with congenital heart disease every 4 hours in Australia.This episode is sponsored by Riff Raff sleep toys. *Trigger warningClaire candidly shares her experience of pregnancy, birth and the loss of Abigail and it may be very triggering or distressing for some listeners.My heart felt heavy recording and editing this episode. Claire contacted me in hope that by using this platform to share her story so others facing a similar reality feel less alone in continuing to live without their baby including parenting and marriage and living after loss.You can find Claire and reach out to her at @abigailsheart on Instagram.You can keep up to date with The Nurtured Village and the podcast at @thenurturedvillage on Instagram.  https://www.rch.org.au/cardiology/heart_defects/Hypoplastic_Left_Heart_Syndrome_HD/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2817797/https://www.victorchang.edu.au/congenitalheartdiseasehttps://www.beyondblue.org.au