Episode 151: Managing MS Pain and Fatigue with Dr. Heidi Maloni

Pain and fatigue are two of the most common and challenging symptoms of MS. These are the symptoms that can stop you from fully engaging in your life at work, at home, with friends, or family.   My guest is Dr. Heidi Maloni. Dr. Maloni is a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS.     Dr. Maloni will share some best practices for managing MS-related pain, we'll talk about some specific medications that can help manage MS-related pain, and we'll also get into the effectiveness of cannabis-based products for managing pain.   And when we talk about fatigue with Dr. Maloni, we'll talk about how to get your friends and family to stop telling you that you're probably just tired, and a nap will fix everything.   We're also talking about why access to affordable healthcare isn't shouldn't be a partisan political issue and what gets lost in the conversation when it is.   If you happen to be an African-American or Hispanic MS patient and you'd like to have a voice in the design of an important MS research study, we'll tell you how you can be a part of that study's Patient Advisory Group. It's an opportunity for the patient perspective to be part of the planning for this study. And it's an opportunity for you to be paid for your participation in that planning.   We'll also tell you about Sidecar, a dramatic short film from SHIFT-MS that illustrates the physical and emotional burden that accompanies MS progression.   And if you're an MS caregiver who would like to contribute to MS research, or you know someone who is, we'll tell you about an online survey just for you.   We have a lot to talk about! Are you ready for RealTalk MS??! Your access to healthcare shouldn't be a partisan issue, right?  2:25 Join the Patient Advisory Group for the CHIMES study  8:32 DUNK MS is going virtual and raising funds for MS research   10:24 SHIFT-MS debuts Sidecar, their latest short film  20:03 Are you an MS caregiver? There's an online survey for you  20:59 My Interview with Dr. Heidi Maloni  22:19 Share this episode  42:06 Please Support the National MS Society COVID-19 Response Fund  42:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/151 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected]: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National MS Society COVID-19 Response Fund CHIMES Study Patient Advisory Group questionnaire DUNK MS SIDECAR: A SHIFT-MS film about the misapprehensions of advanced multiple sclerosis Accelerated Cure Project for MS Survey: Caregiver Relationships with Healthcare Providers Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 151 Hosted By: Jon Strum Guests: Dr. Heidi Maloni, Blake Arnet Tags: MS, MultipleSclerosis, MSResearch, MSSociety, DunkMS, RealTalkMS Privacy Policy