Episode 17. Can't Find The Right Help For Your Rare Brain Disease? DIY discussion with Chris

Chris is the president of the Hypertrophic Olivary Degeneration Association (HODA), a group she started after not being able to find the right help, resources, support, and answers for her questions about HOD. She told me that she relates with a lot of the problems that come up in the other episodes of this podcast. It is fascinating how HOD symptoms can be so much like other brain injury problems, and like with brain injury there is plenty of variability between each person. I appreciate her openness to share about her experiences and her attitude towards helping others not have to deal with the difficulties she is still facing. Her story is a good example of someone reclaiming their life even with a rare brain disease and turning their energy towards battling the disease itself. I am on that same page.https://hodassoc.org/?fbclid=IwAR29KYZWtFK26YnRKGAM0f8bp9lHMqjGzpsHjhyZ7F8ISalvzag9Za9pm4whttps://www.facebook.com/HODAssoc