Episode 18 : La drépanocytose, handicap invisible (avec Jessica GBEDAHI)

Hellooooooow !!! J'espère que tu vas bien. Moi ça va.Aujourd'hui je suis accompagnée de Jessica, jeune femme et étudiante béninoise, avec qui on va discuter de drépanocytose, maladie dont elle est atteinte. On parle des causes de cette maladie qui, quoique très répandue, est encore cruellement méconnue, on parle aussi de ses symptômes et de sa prise en charge, de ce que ça représente de la vivre au quotidien et de son impact sur la santé mentale. On vous donne aussi des ressources pour vous éduquer sur le sujet et pour aider du mieux qu'on peut les personnes drépanocytaires.Références musicales :Twe Twe - Kizz Daniel & DavidoThe prison song - Oscar Heman-Ackah & Jacob Hunter & Double GRéférence de film/série :Blood and water (jusqu'à la saison 3) - NetflixRéférences d'articles sur la drépanocytose :Drépanocytose - La maladie génétique la plus fréquente en France (Inserm)Drépanocytose (Vidal)Message du Ministre de la santé à l'occasion de la journée mondiale de lutte contre la drépanocytose, édition 2021Santé : une application vient en aide aux personnes atteintes de drépanocytose (France Info)La drépanocytose, des traitements curatifs plein d’espoir (Pourquoi Docteur ?)Greffe de moelle osseuse : âge, espérance de vie (Le journal des femmes - Santé)Compte Instagram de DrepaCare : @drepacareCompte Instagram de Laetitia Defoi (l'une des créatrices de DrepaCare) : @miss.letuRéférences de podcasts sur la drépanocytose :Drepaland le premier podcast sur la Drépanocytose (disponible sur toutes les plateformes d'écoute)Référence de livre sur la drépanocytose :Flora et le monstre - La drépanocytose (Dr Mariane de Montalembert)Je te souhaite une bonne écoute et une bonne session de recherche sur la drépanocytose. J'espère que tu apprécieras cet épisode et qu'il t'aura appris des choses. Si oui, n'hésite pas à lui mettre 5 étoiles sur Apple Podcasts et/ou Spotify et à me laisser un commentaire. Si tu as envie de me parler, de continuer la conversation, de me faire des suggestions ou de me poser des questions, tu peux me retrouver sur Instagram à @talkingwithjawu_podcast ou @christiejawu. Tu peux retrouver Jessica sur Instagram à l'adresse @itz_jeyyyy. Bisous et à la prochaine💗.Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

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This episode was published on April 6, 2024.

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