Episode 206: The Importance of Advocacy with MS Activist Jenna Green

If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes: $10 Million increase in funding for the Congressionally-Directed MS Research Program $3 Billion increase in funding for the National Institutes of Health Sustained funding for the CDC's National Neurological Conditions Surveillance System (studying MS is one of the first 2 pilot projects for this new program) Passage of the CREATES Act (designed to lower prices and increase competitiveness in generic drug development) Beyond these milestone achievements, advocating on behalf of your own interests is a personally empowering experience. Joining me to talk about what advocacy is all about is MS Activist Jenna Green. We're also sharing the details of a clinical trial that measured the effects of the Wahls Diet and the Swank Diet on MS-related fatigue and quality of life. We'll tell you about a study that identified a potential biomarker for MS-related cognitive decline. We're talking about the FDA approval of Botox as a treatment for upper-limb spasticity. And we'll let you know how you can support the MS Society of Canada by buying a burger. We have a lot to talk about! Are you ready for RealTalk MS??! This part is all about you  :22 Study measures the effects of Wahls Diet and Swank Diet on MS-related fatigue and quality of life  4:03 Study identifies potential biomarker for MS-related cognitive decline   6:58 FDA approves Botox for managing upper-limb spasticity  10:35 A&W's Burgers to Beat MS benefits MS Society of Canada  11:34 MS Activist Jenna Green talks about what advocacy means and why it matters  14:05 Share this episode  31:46 Download the free RealTalk MS app for your iOS or Android device  32:06 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/206 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: [email protected] Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Advocate for Change -- Be an MS Activist https://nationalmssociety.org/advocacy STUDY: Impact of the Swank and Wahls Elimination Dietary Interventions on Fatigue and Quality of Life in Relapsing-Remitting Multiple Sclerosis: The WAVES Randomized Parallel-Arm Clinical Trialhttps://journals.sagepub.com/doi/10.1177/20552173211035399 STUDY: Cognitive Decline in Multiple Sclerosis is Related to the Progression of Retinal Atrophy and Presence of Oligoclonal Bands: A 5-Year Follow-Up Studyhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8315759/ Updated Botox label information https://media.allergan.com/actavis/actavis/media/allergan-pdf-documents/product-prescribing/20190620-BOTOX-100-and-200-Units-v3-0USPI1145-v2-0MG1145.pdf Burgers to Beat MS https://BurgerstoBeatMS.ca Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 206 Guest: Jenna Green Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS Privacy Policy