Episode 232 - The PSP Association

Progressive Supranuclear Palsy (PSP) and corticobasal degeneration (CBD) affect around 10,000 people in the UK, yet awareness of these rare neurodegenerative conditions remains strikingly low. In this episode of The Journal Podcast, host Luke Holloway speaks with James Cusack, Chief Executive of the Progressive Supranuclear Palsy Association (PSPA), about the realities of living with PSP and CBD, the challenges of diagnosis, and the vital support available to patients and their families. The conversation explores the financial impact these conditions can have, from lost income and care costs to home adaptations and specialist equipment. For insurance and financial planning professionals, it's a powerful reminder of the role that protection, long-term financial planning and community support can play when life takes an unexpected turn. To learn more about the work of PSPA, click here: https://www.pspassociation.org.uk/