Episode 25: Advocating for Sanfilippo Children

Dr. Fontanetta speaks with sanfilippo parent and advocate, Ashley Haywood, to discuss the latest clinical trials, treatment, and political/financial barriers.Hosted by pediatric neuropsychologist, Rebecca A. Fontanetta, PsyD, ABPdN and produced by Rainbow Fish Lab.Website: theneuropsychlopedia.comInstagram: @the_neuropsychlopediaTikTok: @the_neuropsychlopediaYouTube: @the_neuropsychlopedia----------------Resources for this episode ----------------------------Saving Sadie Rae WebsiteSaving Sadie Rae's TikTok: @savingsadieraeSaving Sadie Rae's Instagram: @savingsadieraeCure Sanfilippo Foundation Website

What this episode covers

Dr. Fontanetta speaks with sanfilippo parent and advocate, Ashley Haywood, to discuss the latest clinical trials, treatment, and political/financial barriers. Hosted by pediatric neuropsychologist, Rebecca A. Fontanetta, PsyD, ABPdN and produced by Rainbow Fish Lab. Website: theneuropsychlopedia.com Instagram: @the_neuropsychlopedia TikTok: @the_neuropsychlopedia YouTube: @the_neuropsychlopedia ----------------Resources for this episode ---------------------------- Saving Sadie Rae Website Sa...

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This episode is 54 minutes long.

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This episode was published on May 1, 2026.

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