Episode 3 Patient Frank Rivera bares his soul. episode artwork

EPISODE · Mar 9, 2020 · 57 MIN

Episode 3 Patient Frank Rivera bares his soul.

from Sarc Fighter: Living with Sarcoidosis and other rare diseases · host John Carlin

Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine.  "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast.  Frank was one a runner.  A good one, turning a marathon time of 2:30 and running under a 4-minute mile.  Now, he walks with a cane.  Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis.  He organizes a walk on Long Island.  He's just published a book.  He even worked to get a billboard in New York's Times Square to fight Sarcoidosis.  I hope you enjoy our talk recorded in February of 2020 at Chevy Chase, Maryland during a meeting of advocates for the Foundation for Sarcoidosis Research. Frank's Walk https://www.ticketor.com/sarcoidosisofli/event/6th-annual-sarcoidosis-of-long-island-awareness-walk-187357 Frank's website, Sarcoidosis of Long Island  https://www.sarcoidosisofli.org/ Buy Frank's book:  https://www.amazon.com/Walking-Silent-Pain-Autobiography-Resilience/dp/B084QM4ZFV/ref=sr_1_1?crid=H7OUADZISLMH&keywords=walking+in+silent+pain&qid=1581713780&s=books&sprefix=walking+in+silent+pain%2Cstripbooks%2C160&sr=1-1&pldnSite=1 Other mentions from the Podcast Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ FSR Summits 2020  https://www.stopsarcoidosis.org/patient-summits/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me  [email protected] Sarc Fighter Facebook Page  https://www.facebook.com/SarcFighter/      

Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine. "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast. Frank was one a runner. A good one, turning a marathon time of 2:30 and running under a 4-minute mile. Now, he walks with a cane. Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis.

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Episode 3 Patient Frank Rivera bares his soul.

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Frequently Asked Questions

How long is this episode of Sarc Fighter: Living with Sarcoidosis and other rare diseases?

This episode is 57 minutes long.

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This episode was published on March 9, 2020.

What is this episode about?

Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine.  "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast.  Frank was one a runner.  A good one, turning...

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