Episode 313: Helen's Mom

Today's guest, Catherine, says that in many ways, she grieved for her daughter, Helen, not once but twice. The grieving began after she suffered complications during delivery, which led to seizures that began shortly after birth and multiple medical complications. Catherine grieved for the life she had hoped and dreamed of for Helen. Then, fourteen years later, Catherine's grief started fresh when Helen died unexpectedly in her sleep. Although Catherine says that she grieved Helen twice, Helen's 14 years were not years full of sadness and grief. They were joy-filled years. Catherine loved being Helen's hands and feet. She loved seeing her eyes light up and give big smiles. Catherine was a part of Helen, and Helen was a part of her. One day, when Helen was young, the two of them were watching TV, and Catherine saw the inspirational story of Team Hoyt, a father-son duo who competed in over 1,100 races, including numerous Ironman Triathlons. Son Rick suffered from cerebral palsy, but said that when racing in a specialized wheelchair with his dad, Dick, he felt freedom and joy. After Helen died, Catherine felt lost. She did not know what to do with herself without Helen being beside her. When asking her priest for advice, he answered that he didn't know what she should do, but that for many, participation in sport could be a good healing modality. That's when Catherine began to think once again about the inspirational story of the Hoyts. She knew that she couldn't physically swim, run, and bike with Helen, but perhaps she could still be with her emotionally. That's exactly what Catherine did. Her first triathlon was done almost secretively, with only her husband's knowledge. As she waited in the water of the lake at the beginning of the race, wondering if she had made a mistake in signing up, until the sun began to rise, and she felt Helen with her.  Over the years, Catherine has continued to train and now races in an Ironman triathlon each year, following in the Hoyts' footsteps. She compares the training to her life, first as a mom of a special needs child and now as a bereaved mom. She chronicles her journey in her book, Finding My Stride: A Guide to Finding Power Raising a Child with Special Needs.