Episode 36: Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society episode artwork

EPISODE · Jul 12, 2020 · 33 MIN

Episode 36: Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society

from AiArthritis Voices 360 Talk Show · host International Foundation for Autoimmune & Autoinflammatory Arthritis

Welcome to AiArthritis Voices 360, the official Talk Show for the International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis).    In this episode, Event Host, AiArthritis CEO and person living with AiArthritis diseases, Tiffany Westrich-Robertson, is joined by patient Co-Host, Katie Steele. They speak with Carrie Beach, RN, from the Rheumatology Nurses Society (RNS) about our collaboration to improve patient voices in education and research (featuring our award-finalist Preparing Patients for Precision Medicine project).  This is an excellent example of how patients and rheumatology professionals sit "at the table" to discuss projects - because during the conversation we actually came up with a new spin on the collaboration!  Listen to learn more about our work together to increase patient (and nurse) education about precision medicine and how YOU can join us!   We also start the episode discussing the patient-nurse relationship and how that window of opportunity while we have the nurses' ear could be better utilized.   Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!   If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow. JOIN TODAY!   AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us ([email protected]).     Between May 16 - 20th, we took our AiArthritis Voices 360 Talk Show LIVE, to help teach more people who we are, what we do, and how we impact the lives of those affected by AiArthritis Diseases while honoring the 450 million people worldwide living with our diseases. It also served as the starting line for our 2020 fundraising efforts. This episode is an excerpt from one of those episodes.       Love the show?  Please consider donating so we can continue bringing this amazing resource to you! DONATE TODAY

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Episode 36: Preparing Patients for Precision Medicine - Collaboration with the Rheumatology Nurses Society

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