Episode 39: From Patient to Advocate: A Nurse Researcher's Story on Keratoconus

In this episode of Clearly KC, Dr. Melissa Barnett welcomes Deidra Bonner, PhD candidate, registered nurse, and keratoconus patient advocate. Drawing from both her clinical background and personal experience, Deidra shares how her diagnosis shaped her path toward research focused on the quality of life of individuals living with keratoconus. Together, they explore the realities of delayed diagnosis, the life-changing impact of scleral lenses, and the often-overlooked emotional, social, and functional challenges that extend far beyond visual acuity. Deidra also introduces a holistic framework for understanding the patient experience and discusses the importance of communication, emergency preparedness, and advocacy in navigating life with keratoconus. This episode offers a powerful perspective on what it truly means to care for the whole patient—and why listening to the lived experience is essential to improving outcomes.