Episode 4: Behaviours that Challenge: What can we learn from the i-KNOW project?

In this episode of Research to Reality in Rare Syndromes, we focus on Behaviours that Challenge (BtC) and introduce the i-KNOW (Identifying & Knowing about Behaviour) Project, a psycho-educational course designed to help parents better understand BtC.Dr Marie Dunnion  speaks with Lauren Gregory, a Research Assistant at the University of Birmingham, and Denise Bain, a Speech and Language Therapist. They share how the project started, its goals, and the ways it has helped improve outcomes for children with BtC and their families.See below for links to resources, charities, support services, and related research:i-KNOW ProjectI-KNOW ProjectResourcesCerebra Parent Carer Guide: Looking after your own wellbeing as a parent/carer of a child with a brain conditionCerebra Parent Carer Guide: Managing challenging behaviourCerebra Parent Carer Guide: Self-injury in children with intellectual disabilityMy Communication Passport – a practical and person-centred way of supporting children, young people and adults who cannot easily speak for themselves.Charities and Support ServicesCerebra Charity Website – the national charity dedicated to helping children with brain conditions and their families discover a better life together.The Challenging Behaviour Foundation – for children, young people and adults with severe learning disabilities whose behaviour might be described as challenging, and their families.Research RESEARCH | Cerebra Network – there are a number of projects happening across the networkThe Development and Validation of Models of Risk for Behaviours That Challenge in Children With Developmental Disabilities: A Novel Machine Learning ApproachFor any enquiries, please complete the contact form on our website: CONTACT | Cerebra NetworkFunders:This research was funded by the British Academy of Childhood Disability-Castang Foundation, the European Research Council (ERC) under the Horizon 2020 Framework Programme, Cerebra Charity and The Baily Thomas Charitable Fund.For any enquiries, please complete the contact form on our website: CONTACT | Cerebra Network