EPISODE · Aug 16, 2021 · 1H 11M
Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
from Sarc Fighter: Living with Sarcoidosis and other rare diseases · host John Carlin
Juliet Coffer lives in a cottage in the UK. By her description, it is a small home, yet her lungs only permit her to take a few steps at a time without running out of oxygen. In this episode, Juliet describes what it is like to push on when every breath seems to be an adventure. But not only that -- she has found a way to get around her house in a way that has raised tens of thousands of dollars to fight the disease. Learn more about her remarkable spirit in this episode of the Sarc Fighter Podcast. From Juliet: Just Giving page for details of my fundraising, if anyone would like to donate to my campaign for SarcoidosisUK: https://www.justgiving.com/fundraising/julietcoffer Interview with BBC local TV where they came to film the last 100m of my walk: https://www.youtube.com/watch?v=KNZlMiNV2z4 SarcoidosisUK ‘ Patient Story’ and the full story behind why I did my fundraising: https://www.sarcoidosisuk.org/juliet-coffer-patient-story/ I can be contacted on Twitter: @julietcoffer Instagram: juliet_coffer Facebook: Juliet Coffer (I believe there’s only one of me!) ohn's Moose Encounter! https://youtu.be/fXXTdVo90Zg Bonus Episode on COVID-19 and Sarcoidosis https://beatsarc.podbean.com/e/bonus-episode-sarcoidosis-and-covid-19-presented-by-the-foundation-for-sarcoidosis-research/ Bonus Episode Sarcoidosis and Prednisone: https://beatsarc.podbean.com/e/bonus-episode-sarcoidosis-town-hall-dealing-with-prednisone-presented-by-the-foundation-for-sarcoidosis-research/ MORE FROM JOHN Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE More on aTyr Pharma: https://www.atyrpharma.com/ Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me [email protected] Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/ Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
What this episode covers
Juliet Coffer lives in a cottage in the UK. By her description, it is a small home, yet her lungs only permit her to take a few steps at a time without running out of oxygen. In this episode, Juliet describes what it is like to push on when every breath seems to be an adventure. But not only that -- she has found a way to get around her house in a way that has raised tens of thousands of dollars to fight the disease. Learn more about her remarkable spirit in this episode of the Sarc Fighter Podcast. From Juliet: Just Giving page for details of my fundraising, if anyone would like to donate to my campaign for SarcoidosisUK: https://www.justgiving.com/fundraising/julietcoffer Interview with BBC local TV where they came to film the last 100m of my walk: https://www.youtube.com/watch?v=KNZlMiNV2z4 SarcoidosisUK ‘ Patient Story’ and the full story behind why I did my fundraising: https://www.sarcoidosisuk.org/juliet-coffer-patient-story/ I can be contacted on Twitter: @julietcoffer Instagram: juliet_coffer Facebook: Juliet Coffer (I believe there’s only one of me!) ohn's Moose Encounter! https://youtu.be/fXXTdVo90Zg Bonus Episode on COVID-19 and Sarcoidosis https://beatsarc.podbean.com/e/bonus-episode-sarcoidosis-and-covid-19-presented-by-the-foundation-for-sarcoidosis-research/ Bonus Episode Sarcoidosis and Prednisone: https://beatsarc.podbean.com/e/bonus-episode-sarcoidosis-town-hall-dealing-with-prednisone-presented-by-the-foundation-for-sarcoidosis-research/ MORE FROM JOHN Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE More on aTyr Pharma: https://www.atyrpharma.com/ Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me [email protected] Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/ Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/
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Episode 42 | Juliet Coffer can barely walk without losing her breath. But she was determined to step up to fight sarcoidosis.
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