Episode 61: What you need to know about Patient Registries with Kyle Brown from Patient CrossRoads

Kyle is the founder and CEO of PatientCrossroads, a provider of patient registry solutions to the rare and neglected disease community.  PatientCrossroads collects patient provided medical history and testing results in order to gain insight into disease progression and to recruit patients for inclusion in clinical studies and trials.  Kyle is a respected authority on rare disease patient registries and is a frequent speaker at research conferences educating the non-profit and research community on the need for universally accessible, de-identified patient information.   Kyle's passion is to change the economics of patient provided information from closed, proprietary access, to universally available self-funding programs that accelerate disease research. You can find out more information at PatientCrossRoads.com.