Episode 8: Pathways to Hope with James Kelly & Lorena García Fernández episode artwork

EPISODE · May 23, 2025 · 1H 37M

Episode 8: Pathways to Hope with James Kelly & Lorena García Fernández

from MEF2Cast · host MEF2Cast

In today’s episode, we are joined by James Kelly and Lorena In today’s episode, we are joined by James Kelly and Lorena García Fernández, founders of the MEF2C Foundation and parents to Elijah. James is also a board member for Rare Bird.Lenora and James join us to discuss their journey to diagnosis with Elijah and how that inspired them to start the MEF2C Foundation. They tell us about the ins-and-outs of Elijah’s everyday life and tips and tricks they've picked up along the way. We also discuss their experience with using the ketogenic diet to control Elijah’s seizures. Next, we discuss the lessons learned parenting someone with MCHS and their approach to running their foundations. Finally, we discuss their vision for the future, both for Elijah and MCHS as a whole.If you liked this episode, please comment, review, and subscribe to hear more episodes like this one. If you have any questions, concerns, or are interested in being a guest, please reach out to us via Facebook or email.Thank you to all of our listeners for their time!Find us on Facebook: https://www.facebook.com/profile.php?id=61572393046749Email us: [email protected] the MEF2C Foundation: mef2cfoundation.orgFind Rare Bird: rare-bird.org

In today’s episode, we are joined by James Kelly and Lorena In today’s episode, we are joined by James Kelly and Lorena García Fernández, founders of the MEF2C Foundation and parents to Elijah. James is also a board member for Rare Bird.Lenora and James join us to discuss their journey to diagnosis with Elijah and how that inspired them to start the MEF2C Foundation. They tell us about the ins-and-outs of Elijah’s everyday life and tips and tricks they've picked up along the way. We also discuss their experience with using the ketogenic diet to control Elijah’s seizures. Next, we discuss the lessons learned parenting someone with MCHS and their approach to running their foundations. Finally, we discuss their vision for the future, both for Elijah and MCHS as a whole.If you liked this episode, please comment, review, and subscribe to hear more episodes like this one. If you have any questions, concerns, or are interested in being a guest, please reach out to us via Facebook or email.Thank you to all of our listeners for their time!Find us on Facebook: https://www.facebook.com/profile.php?id=61572393046749Email us: [email protected] the MEF2C Foundation: mef2cfoundation.orgFind Rare Bird: rare-bird.org

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Episode 8: Pathways to Hope with James Kelly & Lorena García Fernández

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This episode is 1 hour and 37 minutes long.

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This episode was published on May 23, 2025.

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In today’s episode, we are joined by James Kelly and Lorena In today’s episode, we are joined by James Kelly and Lorena García Fernández, founders of the MEF2C Foundation and parents to Elijah. James is also a board member for Rare Bird.Lenora and...

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