Ethan Fergon Founder of Goldenhart - Living with a rare congenital syndrome Goldenhar

On the show today we have Ethan Fergon Founder of Goldenhart which he has set up to help others that are struggling with mental health, disorders and various syndromes. Ethan Fergon Founder was born with Goldenhar. Goldenhar syndrome is a rare congenital defect characterized by incomplete development of the ear, nose, soft palate, lip and mandible on usually one side of the body. Ethan talks about how he has lived with the disorder all his life with various operations bullying and also the support of his family. We talk about his love for basketball and the moment he came to realise his new path in life