Everett's Race Against Time | Portland Maine News

A two-year-old from Austin, Everett, is fighting a devastating ultra-rare genetic disorder that affects fewer than 50 kids worldwide—causing seizures, breathing issues, and developmental delays. After 143 days in the NICU, his mom, Marissa, is racing against time to secure a custom-made $3 million “N of 1” drug from Rare Labs, with half of children with this mutation not surviving past age eight. Their campaign, “A Cure for Everett,” has raised $50K so far—and every dollar counts as they fight for Everett’s future while pushing for breakthroughs for others facing similar battles. Donate at acureforeverett.org or their GoFundMe page. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/8410a99eae2f106d