Father of a child with rare disease - The pain and worry has been ‘all worth it’ episode artwork

EPISODE · Jan 10, 2025 · 28 MIN

Father of a child with rare disease - The pain and worry has been ‘all worth it’

from A Letter To Myself · host CNA

When a pin prick to draw blood for their newborn son didn’t stop bleeding for 36 hours, parents Geoffrey Toi and Amelia Teng knew something was very wrong with their child. At six months old, Christopher was diagnosed with Bile Acid Synthesis Disorder – and he is the only patient in Singapore with this rare disease.See omnystudio.com/listener for privacy information.

Episode metadata supplied by the publisher feed · Published Jan 10, 2025

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Father of a child with rare disease - The pain and worry has been ‘all worth it’

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