Father Pleads for Life-Saving Drug Access | Cork News

A grieving father in Cork is fighting to save his son’s life after the HSE rejected funding for a potentially life-changing drug for Friedreich’s ataxia — the same condition that killed his 13-year-old son Rory. His 16-year-old son Paudie desperately needs the treatment, priced at €280,000 per year, which is already available in ten other countries. The HSE cited cost-effectiveness and limited resources, but the family is demanding intervention, calling it a “game-changer” that could slow the disease — even if it’s not a cure. A final decision looms on August 25th, as officials weigh the emotional stakes against Ireland’s healthcare budget. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/2539f02204d0568a