Father Pleads for Life-Saving Drug | Dublin News

A grieving father is fighting to get life-saving drug Skyclarys approved for his son with rare neurological disease Friedreich’s Ataxia, after the HSE rejected funding — a decision that shattered his son’s hopes and left him feeling like he failed him. The drug, already approved in ten countries and hailed as a game-changer that slows progression, was deemed too expensive by Ireland’s health system despite patient and expert endorsements. With only 200 people affected in Ireland, the father is appealing to officials to overturn the decision before a final August 25th vote, urging them to prioritize his son’s survival over cost. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/b97e69784008d0f7