Fianna Fáil Demands Action on Skyclarys | Cork News

Fianna Fáil politicians, including a junior minister, have launched a fierce campaign against the HSE’s refusal to fund Skyclarys, a life-saving drug for Friedreich’s ataxia — a rare, devastating disease that robbed 13-year-old Rory Coady of his life and now threatens his brother Paudie. With 47 signatories, they slam Ireland’s drug reimbursement system as “not fit for purpose,” pointing to seven European nations already covering the treatment. They’re demanding urgent action, recalling how Spinraza was previously overridden in 2019 — and framing their push not just as policy, but as parents fighting for their children’s survival. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/929486d81037c1aa