Fibromuscular Dysplasia (FMD) Registry: Transforming Rare Disease Research with Data

On this episode of Inside the Texas Heart Studio, Dr. Stephanie Coulter sits down with Dr. Daniella Kadian-Dodov, a vascular medicine specialist at Mount Sinai, to discuss Fibromuscular Dysplasia (FMD).The conversation dives deeper than the typical presentation of FMD, which is often characterized by the "string-of-beads" appearance on angiography. Dr. Kadian-Dodov sheds light on the evolving understanding of this condition, including:How the phenotype of FMD has broadened to encompass a wider range of presentations beyond young women with hypertension.The association of FMD with other vascular diseases like SCAD (spontaneous coronary artery dissection) and aneurysms.The importance of registries like the IRAD Registry and the FMD Registry at Mount Sinai in improving our understanding and treatment of FMD.The challenges of obtaining long-term prognostic data due to the relatively young age of most FMD patients.For more information on the FMD Registry visit texasheart.org/fmd 🔗Watch the Studio Interview on Texas Heart TV🔗 Watch Dr. Kadian-Dodov’s Grand Rounds Visit Our Website: texasheart.org