Fighting for Change: How Parents Are Transforming the SEND System with Hayley

What happens when a system designed to support children with additional needs fails them instead? Across the UK, families are facing rejected applications, endless bureaucracy, and years of waiting for vital services. Behind the statistics are real children, real parents, and stories of resilience and determination. Today we dive into the fight for fair education and support for neurodivergent children. This week, Greer speaks with Hayley, a solicitor turned campaigner after her son was denied the support he urgently needed. What began as a personal battle soon grew into a national campaign, as Hayley discovered just how many families were being failed by the system.In this conversation, Hayley shares:Her personal journey navigating the EHCP process for her autistic sonHow local authorities are rejecting thousands of children in needThe creation of the grassroots group Let Us Learn TooPractical ways parents can advocate, both in the UK and beyondWhy changing the culture of SEND support is just as vital as changing the law. TOPICS DISCUSSEDSpecial Educational Needs & Disabilities (SEND)EHCPs and IEPs (UK & US perspectives)Parent advocacy and grassroots campaignsNeurodiversity in educationBarriers families face in the school systemGovernment policy and SEND reformSupporting children with autism and ADHDGlobal perspectives on best practices in education TAKEAWAYS FROM THIS EPISODEMany families in the UK are experiencing EHCP rejections, with some local authorities rejecting over 60% of applications.Hayley’s legal background didn’t shield her from the gaslighting, intimidation, and bureaucracy parents face—highlighting just how overwhelming the system is for most families.Campaigns like Let Us Learn Too and the Fight for Ordinary movement are giving parents and children a louder voice in Parliament and beyond.The most important shift needed? Moving from a “cost-saving” mindset back to a child-centered culture in education.Parents everywhere—whether in the UK, US, or elsewhere—can start small: break down their child’s needs, connect with others, and advocate persistently.Globally, there are models we can learn from—such as Ontario, Canada—showing that better systems are possible when we share best practices. Follow Hayley’s work with Let Us Learn Too Join the September 15th rally in London → [insert link] Join the Unfinished Community WhatsApp. Where you can share your everyday joys, struggles, and differences! Click here to join.Sign up to our newsletter where we continue the conversation along with sharing helpful resources and techniques tried out by parents and professionals in the neurodiverse world. You can know get the episodes on YouTube! Click here to subscribe. Follow the show on all the socials @theunfinishedidea - look for the brain! Instagram Facebook LinkedIn TikTok Website Learn more about your ad choices. Visit megaphone.fm/adchoices