Fighting for Skyclarys: Emily Felix

There’s a campaign gathering attention online right now calling for a life-changing medication to be made available in Ireland. 28 year old Emily Felix, who is living with a rare neuromuscular condition called Friedreich’s Ataxia, is calling for the government to make the drug Skyclarys accessible in Ireland.    This treatment has been approved in other countries and could help slow the progression of the condition, and Emily joins us now to tell us more about her story and what she feels needs to be done. 

NOW PLAYING

0:00 16:45

1×

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

Christian Shockley: Poetry as Equipment for Living (Pt. 2)

Jul 22, 2025 ·55m

Christian Shockley: Poetry as Equipment for Living (Pt. 1)

Jul 15, 2025 ·47m

Garland Dunlap: Exploring Afrofuturism and Education (Pt. 2)

Jul 8, 2025 ·61m

Garland Dunlap: The Power of Education, Faith, and Transformation (Pt. 1)

Jul 1, 2025 ·75m

Marie Poulin on Culinary Creativity, Self-Discovery, and Personal Authority (Pt. 2)

Jun 24, 2025 ·49m

Marie Poulin on Notion, ADHD & Building a Values-Based Business (Pt. 1)

Jun 17, 2025 ·43m

Similar Podcasts

TV 2 - Veien til EM TV 2 og Moderne Media Velkommen til TV 2's EM podkast. Dette er tidenes første EM-podkast fra TV 2. I dagene før kamper skal Jesper Mathisen, Jan-Henrik Børslid og Espen Solbakken m/gjester lade opp. God fornøyelse! For annonsering: [email protected] booking: [email protected] Generally American (A Journey in American English) Christopher M. Chandler, Kris Schauer Hello, Hola, Guten Tag, Bonjour, こんにちは !Welcome everyone, this is a podcast for those wanting to learn about U.S. culture through Standard American English, also known as General American. We talk about various different topics related to the U.S. and the U.S.'s relations with other countries. My co-host and I would like to think of this as more of a journey because you never know where it’ll take us. Plus, since the journey’s more important than the end or the start, we hope that you’ll be willing to join us! Let’s see where it takes us! People Watching with Megan J. Robinson Megan J. Robinson Welcome to People Watching, a podcast where we figure out what it looks like to become the role model we’ve always wanted by talking with real people who've found real role models in their own lives. Together, we cut through all the noise and identify better sources of hope, creativity, and wisdom as we explore how we learn to make decisions about the kind of life we want to live. So join us! Let's do some people watching. www.r215coaching.com Peddlin' Pork with Patti’s Ann Martin A podcast dedicated to honoring the everyday challenges and triumphs of life in the restaurant industry at Patti’s 1880’s Settlement. See acast.com/privacy for privacy and opt-out information.

Frequently Asked Questions

How long is this episode of iRadio's Groupchat?

This episode is 16 minutes long.

When was this iRadio's Groupchat episode published?

This episode was published on May 13, 2026.

What is this episode about?

Can I download this iRadio's Groupchat episode?

Yes, you can download this episode by clicking the download button on the episode player, or subscribe to the podcast in your preferred podcast app for automatic downloads.

URL copied to clipboard!