Fighting to Fix the Broken Healthcare System | Hypopara Series: Part 5

In part 2 of our conversation with Michele Rayes, she shares how legislative change is a critical part of supporting and protecting people living with a rare disease. She discusses legislative bills that the HypoPARAthyroidism Association supports and provides an educational lens into how to be a good patient advocate. Michele explains specific pieces of legislation she is fighting for, like responsible AI integration into insurance claim reviews and denials, and shares why she is so passionate about advocating for yourself and others. Watch part 1 of Michele's interview: https://youtu.be/Qzp6hyhC3_U Key Highlights: • Hear how the HypoPARA Association is working to ensure the patient's voice is included in drug development, clinical education, and research. • Be inspired by Michele’s passion for improving the future of rare disease diagnosis and treatment. • Hear why Michele encourages patients to better understand their health and advocate for their needs. • Learn about Michele’s efforts to advance legislation regarding PBM reform and responsible incorporation of AI into the healthcare system. 00:00 Recap from Part 1 of Patty’s interview 00:44 A Happy Accident: Finding the HypoPARA Association 08:07 Promising Genetic Testing Breakthroughs 12:02 Advocacy on Capitol Hill 14:57 Understanding the System in Order to Change It 18:34 Connect With the HypoPARA Association 19:31 Advice to Younger Self 22:10 Closing Remarks Connect with the HypoPARA Association: https://www.hypopara.org/ https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHw https://www.instagram.com/hypoparaassoc/ https://www.linkedin.com/company/hypoparathyroidism-association/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360 Subscribe to this channel for more inspirational stories.