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Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings episode artwork

EPISODE · Nov 10, 2023 · 1H 9M

Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings

from GlycoCast, a journey of families, sugars and rare disorders · host Ivan Martinez Duncker

We had an insightful conversation with Ann and Steve Nguyen, sharing the touching story of their son Emmett who was affected by PIGA-CDG a type of Congenital Disorder of Glycosylation (CDG). Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders, including PIGA-CDG. For more information on CDGs please visit our sponsor at cdgcare.org.

What this episode covers

We had an insightful conversation with Ann and Steve Nguyen, sharing the touching story of their son Emmett who was affected by PIGA-CDG a type of Congenital Disorder of Glycosylation (CDG). Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders, including PIGA-CDG. For more information on CDGs please visit our sponsor at cdgcare.org.

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Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings

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Frequently Asked Questions

How long is this episode of GlycoCast, a journey of families, sugars and rare disorders?

This episode is 1 hour and 9 minutes long.

When was this GlycoCast, a journey of families, sugars and rare disorders episode published?

This episode was published on November 10, 2023.

What is this episode about?

We had an insightful conversation with Ann and Steve Nguyen, sharing the touching story of their son Emmett who was affected by PIGA-CDG a type of Congenital Disorder of Glycosylation (CDG). Will understand how Emmett's legacy continues to inspire...

Can I download this GlycoCast, a journey of families, sugars and rare disorders episode?

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