For Henry

In this episode, I speak in depth with Henry's mom. Henry is battling a one in a million, severe neurological disorder called Alternating Hemiplegia of Childhood (AHC). Henry's AHC causes him to randomly become paralyzed, have seizures and apneas where he stops breathing for periods of time. Each episode threatens a trip to the hospital for Henry and his parents, and each episode could potentially hold life threatening consequences - an incredibly difficult and terrifying way for Henry and his parents to go through life. The astounding part about Henry's story is that they have found a treatment that would most certainly be life changing for Henry and, even more importantly, potentially life saving. The only barricade between Henry and this treatment is money. Henry's parents have been tasked with raising $3 million to develop the drug he needs, and so they started a foundation and have been doing everything possible to spread the word. Listen in to hear Mary, Henry's mom, describe in greater detail what it has been like for Henry, and where they are in the process now.  To donate and learn more about Henry and AHC go to www.forhenryahc.org or find them on instagram @forhenryahc