EPISODE · Mar 31, 2022 · 18 MIN
Forging a Path in Rare Disease Research, Feat. the Myrovlytis Trust
from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy
In this episode of the podcast, we meet with our partners at the Myrovlytis Trust to talk about their work in rare disease research. Keep up with the Myrovlytis Trust and their new initiatives here: Myrovlytis Trust www.myrovlytistrust.org LinkedIn: https://www.linkedin.com/company/the-myrovlytis-trust Twitter: @Myrovlytis BHD Foundation www.bhdsyndrome.org Facebook: https://www.facebook.com/birthoggdube/ Twitter: @BHD_Foundation BHD Registry: https://birt.healthie.net/register Osteosarcoma Now www.osteosarcomanow.org Twitter: @OsteosarcomaNow
What this episode covers
In this episode of the podcast, we meet with our partners at the Myrovlytis Trust to talk about their work in rare disease research. Keep up with the Myrovlytis Trust and their new initiatives here: Myrovlytis Trustwww.myrovlytistrust.orgLinkedIn: https://www.linkedin.com/company/the-myrovlytis-trustTwitter: @Myrovlytis BHD Foundationwww.bhdsyndrome.orgFacebook: https://www.facebook.com/birthoggdube/Twitter: @BHD_FoundationBHD Registry: https://birt.healthie.net/register Osteosarcoma Nowwww.osteosarcomanow.orgTwitter: @OsteosarcomaNow
NOW PLAYING
Forging a Path in Rare Disease Research, Feat. the Myrovlytis Trust
No transcript for this episode yet
Similar Episodes
Mar 26, 2026 ·1m
Mar 19, 2026 ·34m
Feb 18, 2026 ·11m
Feb 11, 2026 ·45m