EPISODE · Aug 6, 2026 · 1H 24M
From Caregiver to Change Maker: Latasha Holt, PhD on Turning Challenges Into Change
from Hope Charities · host Jonathan James
Advocacy begins with one voice.After years searching for answers for her daughter, Latasha Holt, PhD discovered that receiving a diagnosis was only the first step. The next challenge was changing systems that weren't built for families living with rare diseases.In this inspiring conversation, Jonathan James and Latasha discuss:• Rare disease advocacy• Emergency medical access• School accommodations• Healthcare policy• Empowering caregivers• Finding hope through actionIf you've ever wondered whether one person can truly make a difference, this episode is proof that they can.🎧 Hit play, share with a friend, and don’t forget to follow! Every listen helps us get these conversations to more people who need them.Special thanks to Genentech for sponsoring this episode of the Hope Unmuted Podcast!Support the show
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What this episode covers
Advocacy begins with one voice. After years searching for answers for her daughter, Latasha Holt, PhD discovered that receiving a diagnosis was only the first step. The next challenge was changing systems that weren't built for families living with rare diseases. In this inspiring conversation, Jonathan James and Latasha discuss: • Rare disease advocacy • Emergency medical access • School accommodations • Healthcare policy • Empowering caregivers • Finding hope through action If you've ev...
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From Caregiver to Change Maker: Latasha Holt, PhD on Turning Challenges Into Change
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