From Engagement to Inclusivity: A Conversation with Anne Marie Hayes

From Engagement to Inclusivity: A Conversation with Anne Marie HayesIn this episode of Amplify: Elevating Patient Voices, hosts Ursula Mann and Brent Korte welcome their very own Patient Voice Partners teammate, Anne Marie Hayes—healthcare professional, advocate, and also one of the co-hosts of Amplify. With over 40 years in respiratory health, Anne Marie has lived through both professional milestones and deeply personal loss. Her story reveals the urgency and heart behind her commitment to patient advocacy and inclusivity.Together, they explore why language matters, how “patient engagement” differs from true “patient inclusivity,” and what it means to bring the full breadth of lived experience into healthcare decision-making. Anne-Marie also shares a powerful real-world example of how co-creation with patients changed regulatory and educational practices in Canada.This is a conversation about curiosity, courage, and creativity—and about moving beyond simply listening to patients, to actually building with them.Why You Should ListenLearn the key difference between patient engagement and patient inclusivity—and why it matters.Hear Anne-Marie’s moving personal story of loss and how it fuels her advocacy.Discover how language and terminology shape power dynamics in healthcare.Gain insights into co-creation: practical ways patients can influence education, policy, and innovation.Be inspired to challenge assumptions and embrace uncomfortable truths in the pursuit of better care.Episode Highlights[00:02:00] Anne-Marie shares why she joined Patient Voice Partners and the mission that excites her most.[00:03:30] Personal loss shapes professional passion: the story behind her advocacy.[00:05:00] Engagement vs. inclusivity—why the distinction is critical.[00:07:00] Language matters: honoring preferences and seeing the whole person.[00:10:00] Expanding “patient perspectives” and ensuring representation.[00:12:30] The courage to ask harder questions and listen when it’s uncomfortable.[00:14:30] Case study: co-creating a product monograph with patients in Canada.[00:15:45] Key takeaways: be curious and be creative.