From Surviving to Thriving: Morgan Barrett's CF Journey episode artwork

EPISODE · May 29, 2026 · 58 MIN

From Surviving to Thriving: Morgan Barrett's CF Journey

from RareAF - Advocacy and Facts · host RareAF

In honor of Cystic Fibrosis Awareness Month, Brian and Amanda sit down with writer, photographer, podcaster, and chronic illness advocate Morgan Barrett for an honest conversation about life with cystic fibrosis (CF). Morgan shares her experience growing up with a rare genetic disease, being diagnosed at age seven alongside her sister, and navigating years of treatments, hospitalizations, and uncertainty before the arrival of life-changing CF modulator therapies. The conversation also explores motherhood, chronic illness, mental health, healthcare access, advocacy, and the importance of finding identity beyond a diagnosis. Morgan shares how writing and storytelling through her podcast, Chronically Candid, have helped her process her experiences and connect with others navigating rare and chronic conditions. This episode is sponsored by Heritage Specialty Pharmacy. The views and experiences shared are those of the guest and are provided for general informational and community awareness purposes only. References to specific medications, including Trikafta (elexacaftor/tezacaftor/ivacaftor) and other therapies mentioned in this episode, reflect individual patient experience only and are not intended as an endorsement, recommendation, or medical advice. Heritage Specialty Pharmacy does not dispense or manage therapies for cystic fibrosis and does not promote any specific medication discussed. This discussion does not include complete information about the benefits, risks, or safety profiles of any medications mentioned. Listeners should consult their healthcare provider before making any decisions about treatment or care.

In honor of Cystic Fibrosis Awareness Month, Brian and Amanda sit down with writer, photographer, podcaster, and chronic illness advocate Morgan Barrett for an honest conversation about life with cystic fibrosis (CF). Morgan shares her experience growing up with a rare genetic disease, being diagnosed at age seven alongside her sister, and navigating years of treatments, hospitalizations, and uncertainty before the arrival of life-changing CF modulator therapies. The conversation also explores motherhood, chronic illness, mental health, healthcare access, advocacy, and the importance of finding identity beyond a diagnosis. Morgan shares how writing and storytelling through her podcast, Chronically Candid, have helped her process her experiences and connect with others navigating rare and chronic conditions. This episode is sponsored by Heritage Specialty Pharmacy. The views and experiences shared are those of the guest and are provided for general informational and community awareness purposes only. References to specific medications, including Trikafta (elexacaftor/tezacaftor/ivacaftor) and other therapies mentioned in this episode, reflect individual patient experience only and are not intended as an endorsement, recommendation, or medical advice. Heritage Specialty Pharmacy does not dispense or manage therapies for cystic fibrosis and does not promote any specific medication discussed. This discussion does not include complete information about the benefits, risks, or safety profiles of any medications mentioned. Listeners should consult their healthcare provider before making any decisions about treatment or care.

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From Surviving to Thriving: Morgan Barrett's CF Journey

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This episode is 58 minutes long.

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This episode was published on May 29, 2026.

What is this episode about?

In honor of Cystic Fibrosis Awareness Month, Brian and Amanda sit down with writer, photographer, podcaster, and chronic illness advocate Morgan Barrett for an honest conversation about life with cystic fibrosis (CF). Morgan shares her experience...

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