From TS diagnosis to disclosure: how do you share your story? Part II episode artwork

EPISODE · Apr 2, 2026 · 21 MIN

From TS diagnosis to disclosure: how do you share your story? Part II

from Gilles is in the air · host ESSTS

" ...and it was so weird that something I was trying to erase all my life, I had to suddenly defend it"  In this compelling second part, Salomé, an artist from France, shares her profound experiences of living with the condition and how it has shaped her life, relationships, and self-awareness. Salomé candidly discusses the challenges and growth that come with embracing her diagnosis, providing insight into the nuanced realities of managing Tourette Syndrome—an aspect that's often misunderstood by society at large. In our conversation with Salomé, we explore the intersections of living with Tourette Syndrome and maintaining a career as an artist, offering a deeply personal perspective on navigating societal expectations and personal identity. She opens up about the misconceptions surrounding Tourette Syndrome, particularly the misbelief that it's primarily characterized by the utterance of "rude words" as she puts it. Instead, she offers a revealing look at the variety of her symptoms, vocal tics and hyper-focus, and how these influence her artistic practice. We also discuss the role that family plays in forging an understanding of the condition, and the unique challenges of conveying the reality of living with Tourette to romantic partners and colleagues. Dive into this episode for an intimate look at resilience and authenticity in the face of adversity. Thank you Salomé for your engaging narrative!    Website

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From TS diagnosis to disclosure: how do you share your story? Part II

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