Genetic Testing: Time to Test and Process

In this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic testing for Huntington’s disease. Now in its fourth year, HD Genetics provides remote genetic counseling and testing services for the HD community, supporting families as they navigate difficult decisions around predictive genetic testing. The conversation covers the personal journey of deciding when—or if—to get tested, the emotional and practical implications of positive, negative, or ambiguous results, and the importance of individualized support. Wes explains the different testing methods available, their accuracy, and what test outcomes mean for individuals and their families. The episode also delves into common misconceptions, the role of genetic counseling in managing expectations, and the significance of timing in the decision-making process. Whether you’re considering genetic testing, supporting a loved one, or simply want to better understand Huntington’s disease, this episode offers compassionate guidance and expert insights into one of the most personal choices facing the HD community.