Girl with Rare Disease Inspires Search for Bone Marrow Donors

Hallie Bae Barnard is an eight-year-old girl with Diamond Blackfan Anemia, a rare condition that has set her family and friends on a search for a suitable bone marrow donor. But her understanding of the need of others in a similar situation has her on a quest to find not only a match for herself, but for many others who are unable to find a life-saving bone marrow donation they need. We spoke to Jennifer Scott, a founding board member and vice president of Media and Communications for Hallie’s Heroes, about Diamond Blackfan Anemia, the challenges of finding bone marrow donors, and the impact the organization is having.