GMPPA-CDG: A Cure Odyssey episode artwork

EPISODE · Apr 18, 2024 · 1H 25M

GMPPA-CDG: A Cure Odyssey

from GlycoCast, a journey of families, sugars and rare disorders · host Ivan Martinez Duncker

Join hosts Karen Morici and Dr. Ivan Martinez Duncker as they welcome Diana Roetting, a dedicated mom on a mission to find a treatment for her daughter Rosie with GMPPA-CDG, and Kristin Kantautas PhD, a pillar in the CDG community and leader at Perlara, CDG Canada, and FCDGC. It will be a valuable lesson for families navigating through the odissey of finding drugs that improve the life of their children. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.

Episode metadata supplied by the publisher feed · Published Apr 18, 2024

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GMPPA-CDG: A Cure Odyssey

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This episode was published on April 18, 2024.

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