GMPPA-CDG: A Cure Odyssey - GlycoCast, a journey of famil...

What this episode covers

Join hosts Karen Morici and Dr. Ivan Martinez Duncker as they welcome Diana Roetting, a dedicated mom on a mission to find a treatment for her daughter Rosie with GMPPA-CDG, and Kristin Kantautas PhD, a pillar in the CDG community and leader at Perlara, CDG Canada, and FCDGC. It will be a valuable lesson for families navigating through the odissey of finding drugs that improve the life of their children. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.

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Frequently Asked Questions

How long is this episode of GlycoCast, a journey of families, sugars and rare disorders?

This episode is 1 hour and 25 minutes long.

When was this GlycoCast, a journey of families, sugars and rare disorders episode published?

This episode was published on April 18, 2024.

What is this episode about?

Join hosts Karen Morici and Dr. Ivan Martinez Duncker as they welcome Diana Roetting, a dedicated mom on a mission to find a treatment for her daughter Rosie with GMPPA-CDG, and Kristin Kantautas PhD, a pillar in the CDG community and leader at...

Can I download this GlycoCast, a journey of families, sugars and rare disorders episode?

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