EPISODE · Apr 18, 2024 · 1H 25M
GMPPA-CDG: A Cure Odyssey
from GlycoCast, a journey of families, sugars and rare disorders · host Ivan Martinez Duncker
Join hosts Karen Morici and Dr. Ivan Martinez Duncker as they welcome Diana Roetting, a dedicated mom on a mission to find a treatment for her daughter Rosie with GMPPA-CDG, and Kristin Kantautas PhD, a pillar in the CDG community and leader at Perlara, CDG Canada, and FCDGC. It will be a valuable lesson for families navigating through the odissey of finding drugs that improve the life of their children. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.
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GMPPA-CDG: A Cure Odyssey
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