Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214

Monday, August 10, 2026 - Week 33   Make sure to watch #S10e213 first! https://www.linkedin.com/posts/curesyngap1_camp4-trial-approved-in-australia-argentina-activity-7491598254027984896-wWTg 145 done!  Out of 516 in US per last census: (https://www.linkedin.com/posts/curesyngap1_syngap1census-syngap1-census-activity-7478070129340215296-6Hjx)   CLINICAL TRIAL READINESS SURVEY - http://curesyngap1.org/CTRpoll Do it now, let us figure out the state of our community.   CITIZEN Sign up now! https://www.citizen.health/ai-advocate/syngap1 Everyone with a sick kid needs this.   Different from CONNECT: https://curesyngap1.org/curesyngap1connect Make sure we know how to reach you. STUDIES ARE HAPPENING - Albus, thank you to those families. Plug it in. - Combi[o]mics - Thank you for doing this if invited. - Everyone will get an invite to do an ORCA Validation Study, please do this.  If you don’t get that email by end of August, bug us.  We are only inviting those we can confirm have a mutation.   PERSONAL FUNDRAISERS Fundraisers advance our mission & help you connect to community #ForAda curesyngap1.org/forada is over $104k of $10k #4Ford curesyngap1.org/4ford is over $20k of $20k   SIBLINGS - Go Porter! cureSYNGAP1.org/Sibling    THINGS TO LOOK FORWARD TO… 5TH SCRAMBLE FOR SYNGAP, SC – 54 days till October 3rd Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26   SHOOT FOR SYNGAP, UT – 96 days till November 14th curesyngap1.org/calendar/shoot-for-syngap1   FIGHT FOR FELIPE, MA - 111 days till November 29th curesyngap1.org/Fight26   CURE SYNGAP1 CONFERENCE - 115 days until December 3rd & 4th cureSYNGAP1.org/Reg26 rooms available: ‭cureSYNGAP1.org/denhyatt for $159.  In on Wed, out on Saturday.   PUBMED Pubmed 2026 is at 47. +14 vs the week. (61 last year was +9) We are already at the 3rd highest year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date   USA 🇺🇲: Use your ICD-10, F78.A1   SOCIAL MATTERS 5,159 LinkedIn.  https://www.linkedin.com/company/curesyngap1 1.6k YouTube.  https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 43.7k Insta https://www.instagram.com/curesyngap1   Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 214 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy