Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214

Monday, August 10, 2026 - Week 33Make sure to watch #S10e213 first! https://www.linkedin.com/posts/curesyngap1_camp4-trial-approved-in-australia-argentina-activity-7491598254027984896-wWTg145 done!  Out of 516 in US per last census: (https://www.linkedin.com/posts/curesyngap1_syngap1census-syngap1-census-activity-7478070129340215296-6Hjx)CLINICAL TRIAL READINESS SURVEY - http://curesyngap1.org/CTRpollDo it now, let us figure out the state of our community.CITIZEN Sign up now! https://www.citizen.health/ai-advocate/syngap1Everyone with a sick kid needs this.Different from CONNECT: https://curesyngap1.org/curesyngap1connectMake sure we know how to reach you.STUDIES ARE HAPPENING- Albus, thank you to those families. Plug it in.- Combi[o]mics - Thank you for doing this if invited.- Everyone will get an invite to do an ORCA Validation Study, please do this.  If you don’t get that email by end of August, bug us.  We are only inviting those we can confirm have a mutation.PERSONAL FUNDRAISERSFundraisers advance our mission & help you connect to community#ForAda curesyngap1.org/forada is over $104k of $10k#4Ford curesyngap1.org/4ford is over $20k of $20kSIBLINGS - Go Porter!cureSYNGAP1.org/Sibling THINGS TO LOOK FORWARD TO…5TH SCRAMBLE FOR SYNGAP, SC – 54 days till October 3rdClassic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26SHOOT FOR SYNGAP, UT – 96 days till November 14thcuresyngap1.org/calendar/shoot-for-syngap1FIGHT FOR FELIPE, MA - 111 days till November 29thcuresyngap1.org/Fight26CURE SYNGAP1 CONFERENCE - 115 days until December 3rd & 4thcureSYNGAP1.org/Reg26 rooms available: ‭cureSYNGAP1.org/denhyatt for $159.  In on Wed, out on Saturday.PUBMEDPubmed 2026 is at 47. +14 vs the week. (61 last year was +9) We are already at the 3rd highest year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=dateUSA 🇺🇲: Use your ICD-10, F78.A1SOCIAL MATTERS5,159 LinkedIn.  https://www.linkedin.com/company/curesyngap11.6k YouTube.  https://www.youtube.com/@CureSYNGAP111.1k Twitter https://twitter.com/cureSYNGAP143.7k Insta https://www.instagram.com/curesyngap1Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10Episode 214 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy