Going to Extreme Lengths
from RARECast
Chandler Crews was born with the rare, genetic condition achondroplasia, the most common form of dwarfism. In 2010, she decided to undergo a series of limb lengthening surgeries, which over a four-year period increased her height to 4’ 11” from 3’ 10.” We spoke to Crews, founder and president of the nonprofit patient organization The Chandler Project, about her experiences living with the condition, her decision to undergo the surgery, and how she views new therapies working their way through clinical development that seek to promote growth in people with achondroplasia.
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What this episode covers
Chandler Crews, founder and president of the nonprofit patient organization The Chandler Project, discusses her experiences living with the achondroplasia, her decision to undergo surgery to lengthen her limbs, and how she views new therapies working their way through clinical development that seek to promote growth in people with achondroplasia.
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