Governing the Genome: Whose Data, Whose Benefit?

As genomic medicine advances, questions around consent, data sharing, ownership and trust are becoming increasingly important. In this episode of When the Code Speaks, we are joined by Prof Jantina de Vries and Dr Melissa Nel to explore the ethical and governance challenges that sit at the heart of genomic research. Together, we discuss what responsible data stewardship looks like in an African context, why community engagement matters, how genomic data can be shared ethically and what it takes to ensure that the benefits of research are returned to the communities who make it possible. This conversation highlights the critical role of ethics in building a genomic future that is equitable, trustworthy and sustainable.