He Told Me I Had Dementia… Then Hung Up | Living With Lewy Body Dementia EP07 episode artwork

EPISODE · May 18, 2026 · 34 MIN

He Told Me I Had Dementia… Then Hung Up | Living With Lewy Body Dementia EP07

from The Equity Podcast · host Grant Longwe

In this powerful and emotional episode, I sit down with John Richard Pagan to discuss his journey living with younger-onset Lewy body dementia, navigating stigma, surviving healthcare trauma, and becoming a global advocate for people living with dementia.John shares the devastating moment he received his dementia diagnosis over a telehealth call, the mental health struggles that followed, and how faith, community, and advocacy helped him rebuild his life.This conversation goes beyond medicine and explores the real human experience of dementia, caregiving, diagnosis, mental health, LGBTQ+ identity, healthcare systems, and hope.In this episode, we discuss:🧠 Younger-onset dementia🧠 Lewy body dementia symptoms and diagnosis🧠 Mild cognitive impairment (MCI)🧠 Dementia stigma in healthcare and society🧠 Mental health after diagnosis🧠 LGBTQ+ experiences in healthcare🧠 Caregiving and support groups🧠 Brain health advocacy🧠 Living with dementia🧠 The importance of patient voices in researchThis episode is essential viewing for:caregivers,healthcare professionals,researchers,students,advocates,and anyone interested in brain health and dementia awareness.If this conversation moved you, please:👍 Like the video💬 Leave a comment📢 Share with others🔔 Subscribe for more conversations on dementia, brain health, caregiving, advocacy, and global health#Dementia #LewyBodyDementia #YoungerOnsetDementia #BrainHealth #MentalHealth #Healthcare #Caregiving #DementiaAwareness #GlobalHealth #Neurology #MildCognitiveImpairment #Podcast

Episode metadata supplied by the publisher feed · Published May 18, 2026

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He Told Me I Had Dementia… Then Hung Up | Living With Lewy Body Dementia EP07

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