Help 4 HD News Update with Louise Vetter CEO HDSA

Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.   We will be discussing the following information: I.             HDSA Overall Implementation of Strategic Plan guides everything we do with clear goals and practices to support our missionThe result: new advocacy, education and research programs to support HD families II.           Research HD Human Biology ProjectHDSA Research WebinarsDon King Fellowships III.          Education & Community Support National Social Worker to staff HelplinePartnership with HDYOResources regarding Caregiving, Longterm Care and Genetic testingNew HDSA Center of Excellence grant program IV.          Advocacy HD Parity ActSocial Security AdministrationUS Food & Drug Administration V.           Importance of Community Engagement More HDSA Chapters & AffiliatesMore Team Hope WalksMore visibility: Family is Everything as a new way of building awareness of HD to new audiencesMore participation in science:  Endorsement of Enroll-HD VI.          Closing thoughts The entire HD community shares a common goal – to end HD.  Together we are stronger!