HELP 4 HD with Chris Furbee

What this episode covers

Our special guest this show is the amazing and dynamic CHRIS FURBEE. Chris was born April 30, 1966 and tested positive (43 repeats) for the Huntington's Gene in 1996. He recently came to terms that he is in the early stages of Huntington's Disease. He has been working on a documentary about his mom and life with Huntington's Disease. The story follows him from his decision to go back home to West Virginia to visit his mom for 2 months to see if she could continue living on her own or if he needed to place her into a nursing home.... The following year he went to get the genetic test and found that he did inherit the gene from his mom. The story does not end there as he has chosen to empower himself by speaking to medical students at UCSF and Stanford. He decided that he had to live a positive life and educate as many people about HD.... Chris has an annual festival event called Furb on the Green where he gets to play in his band, Ik Nak Fu and showcase many other talents. The proceeds are used to fund his documentary “Huntingtons Dance”.... Chris has been featured many times in the media and has received numerous honors for his advocacy and work for the Huntingtons disease cause.... Visit Chris Furbee’s website: http://www.huntingtonsdance.org.... His website is to help educate people about Huntington's Disease and promote his documentary. And please, don’t forget to donate while you are there. We all need his documentary to be completed as a professionally produced and very poignant depiction of what the HD life is like. What grabbed my attention next on his website was the Memorial Page. He has a dedication page for his mother Rosemary Shockey which has some pictures of her and paintings she did. Additionally, he honors many other families whose loved ones have gone before.... Please join us for this very special show!! Talk to you soon...

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