Hemochromatosis With Michael from Guatemala

Send us Fan MailHereditary Hemochromatosis (HHC) is a genetic condition that causes the body to absorb too much iron, leading to serious health complications if left untreated. Many people go undiagnosed for years, mistaking symptoms for other conditions.In this episode of Rare Chef, I sit down with Michael J. Tallon, an author, traveler, and rare disease advocate, to discuss his personal journey with hemochromatosis. Michael’s battle with iron overload nearly cost him everything, but it also gave him a powerful story to tell. His memoir, Incompatible with Life, explores his experiences with the disease and his incredible life adventures—from teaching in Brooklyn to bartending in Guatemala.🔗 Read the introduction to Michael’s unpublished book here:👉 https://www.michaeljtallon.com/book📢 Subscribe for More Rare Disease Advocacy & Awareness!If you found this episode valuable, don’t forget to like, comment, and subscribe to Rare Chef for more conversations about rare diseases, patient advocacy, and health education.📞 Need Help? You Are Not Alone.If you or someone you know is struggling, please reach out for support. Call or text 988 for the Suicide & Crisis Lifeline—help is available 24/7.#Hemochromatosis #RareDisease #RareChef #MichaelJTallon #IncompatibleWithLife #IronOverload #HealthAdvocacyHereditary Hemochromatosis (HH) is a genetic condition that causes the body to absorb to much iron leading to serious health complications if left untreated.  Many people go undiagnosed for years mistaking other conditions for other conditions.  In this episode of Rare Connection, I sit down with Michael J. Talon an author, traveler and rare disease advocateto discuss his personal journey with Hemochromatosis.  Michael's battle with Iron Overload nearly cost him everything, bit it also gave him a powerful story to tell.  His memoir, "Incompatible with Life:" explains his experiences wtth the disease and his incredible life adventures from teaching in Brooklyn to bartending in Guatemala.  Read the introduction of Michael's unpublished book here:  michaeljtalon.com/bookIf you found this episode insightful please subscribe to my YouTube channel Rare chef, and my podcast Rare Connection wherever you are listing or watching.  Please also like and comment below.  I would love to hear your thoughts.Check out Mike's website:  https://www.michaeljtallon.com/Chapter Markers0:000:00 Intro0:02:00 Hereditary Hemochromotosis can be picked up with a family histiry screening0:03::29 early signs0:06:22 Misdiagnosis with diabetes0:07:39 Doctor suspects cirrhosis0:10:11 New Radiologist finds cirhosis0:11:34 Mike goes home to New York0:12:33 Mike's father buys him health insurance0:13:09 Fibroscan0:15:08 Liver Transplant recommended0:15:21 Mike is ordered to stop drinking0:16:21 Portal Vein Hypertension0:17:05 Mike is put on beta blockers0:17:40 Heart failure0:18:22 Mike passes out0:20:16 step down unit0:21:14 High Ferritin level0:23:23 Mike is transfered to the cardiac ward0:24:08 Mike is diagnosed with Hereditary Hemochromotosis at 480:24:36 Hereditary Hemochromotosis is commonly diagnosed at autopsy0:28:49 Hereditary Hemochromotosis is most common in a Keltic population0:30:20 Challenges and misconceptions0:32:28 What symptoms should you look for0:34:38 How HH changed Mike's daily life0:37:24 suicide attempt0:38:29 turning point0:40:04 Long Term changes0:40:56 Treatment For HH0:44:36 History of HH0:45:49 Balancing of Humors0:53:15 Kelation Therapy0:55:57 How HH affected Mike's aventurous life1:00:46 Ventricular assist device1:06:25 Something about libing with HH thatSupport the show