Home Care Nursing - The Good, The Bad, and The Ugly

Christine Boyle returns to Disability and Faith to share candidly about life as a disability mom and caregiver, focusing on home care nursing and all that comes with it. Christine recounts both meaningful relationships and alarming experiences with nurses, emphasizing the need to set clear standards to protect the “sacred space” of your home. She provides practical tips for managing home nursing, while also discussing the state's obligations to fulfill authorized hours. She also discusses the current realities of home care nursing: low wages, caregiver shortages, Medicaid waiver hours, agency accountability, fraud concerns, and advocacy successes (including DOJ action in Florida). You are Invited In! 00:00 Welcome to Studio Court 01:39 Why Home Care Nursing 02:42 Serving Disability Families 05:18 Saying Goodbye to Jess 07:59 Life After School Ends 14:29 Why This Story Matters 17:48 Early Waiver Years 19:45 Running Nursing at Home 24:31 Wild Nursing Stories 35:46 When You Must Let Go 38:37 Being Clear Is Kind 40:58 Safety and Home Cameras 41:45 Home Camera Boundaries 42:38 Feedback And Courage 45:59 Keeping Great Nurses 47:11 Caregiver Shortage Reality 49:59 Emails And Documentation 51:36 Medicaid Fraud Zero Tolerance 54:54 State Compliance And Lawsuits 01:02:16 Home Expectations 01:05:22 Disability Dignity Stories 01:08:33 Guarding Your Sacred Space 01:13:37 Part the Waters Prayer 01:21:53 Church Support And Wrap Up