Hope in Motion for Rare Disease | Nottingham News

A Nottinghamshire family is rallying global support to fund a life-changing gene therapy for their two children, Rachael and JoJo, both battling the devastating RRM2B-related mitochondrial disease. With no cure available and only symptom management, the siblings face progressive decline—Rachael needing constant care, JoJo living with fear of his future. Inspired by global advocates like Emily McKenna and the legacy of Charlie Gard, their parents launched “More Tomorrows for Mito,” a campaign aiming to raise £450,000 by June 2027 to develop and deliver the first-ever gene therapy targeting the disease’s root cause. This patient-led effort offers hope not just for their children, but for thousands worldwide, turning a desperate plea into a movement for more tomorrows. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/2ffafc0cbaf720b3